Part Two: What Does Being Sick Look like, Anyways??
While it is not uncommon for people with disabilities, both young
and old, to feel misunderstood, how they experience this can take all
sorts of forms. In this part, kids look at how their disability is received
by both acquaintances and strangers. They protest others' inability to
believe them, to understand them, to receive them simply as they are.
Does Being Sick Look like, Anyways??: Based on letters
written by Rebecca at age eighteen. Rebecca had had chronic fatigue
immune dysfunction syndrome (CFIDS) since she was twelve.
- It’s No Big
Deal: Features a description by Nathaniel at age
five about what it was like for him to live with Apert’s
syndrome, the rare condition with which he was born.
Just Never Felt Beautiful: Laura, who had a bilateral
cleft lip and palate, wrote the journal entries included here
between the ages of fifteen and twenty-one.
- Excuse Me, I’m
Deaf!: This is a story Christine Pantapas wrote when
she was eighteen about what it was like for her as a person who was
Deaf to go out on a Saturday night to a dance club in Boston.
- A Child with No
Family: Features a song written by
three girls between the ages of fifteen and nineteen. The girls were
attending a music therapy program for young people with a range of emotional
disabilities, including chronic low self-esteem, depression, and anxiety,
and who were considered to be at risk for drug use, teen pregnancy,
and antisocial behavior.